Would you be willing to be part of making a difference in the way this rare diagnosis is seen by society?

Our Story is one of hope, endurance and perseverance.

Our Mission is to shine light on something many have already written off and given up on. 

Our daughter, Millie, was born with a rare brain malformation called Alobar Holoprosencephaly. This congenital diagnosis means that part of her brain didn’t develop, and the part that did develop didn’t develop correctly.

We didn’t learn about her diagnosis until she was two months old, when we were told it was “not compatible with life.” We’ve been turned away by some of the largest hospitals in the U.S. Appointments were canceled, doors were closed, and hope was taken away from us.

We were told Millie should have been a miscarriage. That she should have been stillborn. That she should have died moments after birth. That she would never leave the hospital. And that, in the best-case scenario, she might live four to six months.

Unfortunately, functional neurology is a new field, it first came about around 40 years ago! Because of that, it is yet to be covered by insurance and comes at an extremely steep price. Each 2 week intensive costs between $50,000 and $60,000 depending on the decided treatment each round, which she needs every 3 months. In the in between months, Millie’s continuous therapy costs $3,000 a week, with each hour costing $500.  We’re wondering if you would be willing to sponsor our sweet girl in getting her life saving treatments. Her treatments include all types of therapies heavily focused on neurological development as well as stem cell treatments! These are cutting edge treatments that will keep our daughter progressing in ways that we only dreamed would be our reality. 

Our little Miracle Millie turned 3 in August! God is working some major miracles in our girl. He’s working those miracles out majorly through Millie’s Functional Neurologist, Dr. Brandon Crawford. Through the phenomenal, groundbreaking research he’s done, he’s helped in growing the actual mass of Millie’s brain. When she was once believed to not live long or be anything more than of a vegetated state. We now believe, with the help of Dr. Crawford, Millie will continue to grow and be able to do all the things any typically developing child can do! 

With your help we can continue to make change in the neurological community that will benefit, not only Millie, but anyone who has any neurological impairments. Will you come alongside us in this journey and join us in making functional neurology known to everyone who has given up or lost hope? 

Thank you for taking the time to read this and considering helping us. If you’d like to donate, please click the button below

Thank you so much - and God Bless you.

Bill and Meg Longhenry