Would you be willing to be part of making a difference in the way this rare diagnosis is seen by society?

Our story is one of hope, endurance and perseverance.
Our goal is to shine light on something many have already written off and given up on. 

Our daughter Millie was born with a rare brain malformation called Alobar Holoprosencephaly. This congenital diagnosis is one where part of the brain doesn’t develop and the part that does, doesn’t develop correctly. We didn’t find out about her diagnosis until she was 2 months old and we were told it’s not compatible with life. We’ve been turned down by some of the largest hospitals in the U.S., appointments were cancelled and hope was taken away from us. Millie should’ve been a miscarriage, still birth, died moments after birth, never leave the hospital, best case is 4-6 months. Our little Miracle Millie will be 3 in August! God is working some major miracles in our girl. He’s working those miracles out majorly through Millie’s Functional Neurologist, Dr. Brandon Crawford. Through the phenomenal, groundbreaking research he’s done, he’s helped in growing the actual mass of Millie’s brain. When she was once believed to not live long or be anything more than of a vegetated state. We now believe, with the help of Dr. Crawford, Millie will continue to grow and be able to do all the things any typically developing child can do! 

Unfortunately, functional neurology is a new field, it first came about around 40 years ago! Because of that, it is yet to be covered by insurance and comes at an extremely steep price. Each 2 week intensive costs between $50,000 and $60,000 depending on the decided treatment each round, which she needs every 3 months. In the in between months, Millie’s continuous therapy costs $3,000 a week, with each hour costing $500.  We’re wondering if you would be willing to sponsor our sweet girl in getting her life saving treatments. Her treatments include all types of therapies heavily focused on neurological development as well as stem cell treatments! These are cutting edge treatments that will keep our daughter progressing in ways that we only dreamed would be our reality. 

With your help we can continue to make change in the neurological community that will benefit, not only Millie, but anyone who has any neurological impairments. Will you come alongside us in this journey and join us in making functional neurology known to everyone who has given up or lost hope? 

Thank you for taking the time to read this and considering helping us. If you’d like to donate, please click the button below

Thank you so much - and God Bless you.

Bill and Meg Longhenry